24th May - Day 4

Will edit more later but just a quick note to say Rob left on time, had alarms set all over the house starting at 2.45am to 3.15am. (It worked)
We had breakfast and even got to watch part of an Austin Powers movie before it was time to head out. Lots of excited children at the school and like myself lots of sleepy, quiet parents. The coach left promptly at 4.15am Rob sat grinning and waving by the window. Will miss my little shadow this week but he promises to take hundreds of photos to show Jon when he gets home. Have looked at the weather for his area says no rain, good luck Rob enjoy your trip!

Jon was very very tired today when I visited, not sure if its from the drugs or the fact the pumps keep beeping during the night when the bags of fluids finish, either way he spent alot of time trying to sleep but with the amount of nurses/doctors that pop in to do tests all the time, and the cleaners and tea ladies coming in other times, its not easy for him to catch up on lost sleep.

Hes got a bit of pain in his neck where his hickman line is, they think he may have an infection near the tube so have put him on more tablets, his tablet count at the min is approx 10 per time now with the added anti biotics.

We did know that Jon would need to get unwell to get well (how i explained it to the kids) but seeing it happen makes it hard. They took bloods yesterday to check his levels as to whether he can come of the fluids yet.

Keep going Jon, were all with you on this journey, and to pinch the guild wars motto "You never fight alone", I will be beside you all the way, Love Lizz