22nd May - Day 2

Jon had a quiet morning today as I didn't arrive until lunchtime, found him busy on the laptop buying players for his virtual footie team game. They started his Chemo and steroids a bit earlier today, apparently his steroids finished at 2am yesterday, they finished at 10pm today.



Found out a bit more about Jon's treatment today its still all another language to me but in case anyone wants to know:

Day 1 & 2 = Idarubicin (Chemo) for 1/2 hour/ Dexamethasone (steroid) for 12 hours/ Cytarabine for 1 hour.

Alongside this are eyedrops, anti sick pills, anti fungal pills.. hes going to rattle.

Day 3 is a different Chemo called Methotrexate but not sure which of the previous it replaces. Will find out tomorrow.

All in all, todays treatment has gone a little better sickness wise, but Jon's heart has speeded up a bit, they assure us its pretty normal on the amount of steriods he is on, and they are giving him extra fluid bags into his beads to help counter act it. Hes had a full MOT today of ECG, and Blood sugar, weight and then all the normal obs. Cant fault the efficiency of the staff, everyone is great.

When I left at 6.30 Jon was joined by his Dad, and 2 sisters Kim & Sarah, Thanx for the dvd's Sarah, not sure Im going to watch the horror one but might catch the comedy together this week sometime.

I'm busy getting eldest son packed up ready for a 5 day school trip to Germany, hes going to Linz (I think), not easy trying to keep everything going at home and get him ready to go. Thankfully Mum has been on hand and done some shopping for me today for bits I had forgotten. Cheers Mum xxx

Oh I must remember to speak to the nurses tomorrow,need to warn them to clear out any people in rooms and wards next to Jon tomorrow if they let him watch the football, Liverpool in the European cup final... am so glad I'm going to be at home in bed asleep as I will be up at 3am on Thurs to get Rob to school for his trip.