I'd rather he fought fires anyday.........: 5th August

5 August 2007

5th August

Busy day today for visitors, this morning Jon had his sister Sarah visit, then at lunchtime his other sister Kim came to visit with Karl.

Just to totally finish Jon off I turned up with mum and dad and the boys, we had gone out for lunch then all went up to the hospital for an hour, then mum and dad took the boys home for a few hours to give me some time with Jon.

Boys a message from Daddy : I loved the new poster you made me Chris the animals on it look fantastic, and Rob thank you for the football poster It looks great on the wall.

1 comment:

Anonymous said...: Hi Jon,
Great to see you yesterday, you are looking well. Thanks for sharing the 'nose' story haven't quite found my appetite yet lol! Fingers crossed for Wednesday, hope to see you soon.
Love Kim & Karl x x; 6 August 2007 at 13:46

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Our Journey

September 08 - Symptoms return, Brain Scan reveals Lymphoma has returned sadly there is nothing more can be done to help Jon. We are now just living each day and cherishing each moment we have together as a family.

I have entered into the 2008 Race for Life to raise money for Cancer Research. Please feel free to sponser me and help me help Jon and others to get the treatments they need.
my page is:

http://www.raceforlifesponsorme.org/elizabethbarrett1

March 08:

Life has dealt us a cruel blow, after symptoms returning a checkup at the hospital has confirmed that Jon's Lymphoma has returned, so once again we return to this blog for support and strength from our friends and family and I will try my best to keep you all informed of how things are going.

Sept07:
Jon has amazed everyone, on September 4th 2007 he was told that he no longer has any cancer cells, along with this news came the fantastic news that the brain tumour they said he would have for life, also seems to have run away, he called his lymphoma Brian... he said Brian wouldnt win... (Brian may have won Big Brother 8) but Jons Brian lost !!!!

The Start:
At the moment my blog is here to help myself and Jon through the journey against cancer. The title of my Blog refers to the fact I would rather he was with his fire crew battling a fire than having to fight cancer.

Jon has a Large B-Cell Lymphoma in the Brain (He has called it Brian) and will soon be starting Chemotherapy to battle against it.

We were told its treatable but not curable. We are both being positive that Jon can win. The support from family and friends is more than we can ever thank people for.

Please feel free to leave comments.

Treatment Schedule

This is a rough timetable of Jon's treatments that he had

17th April 2007
Swindon Hospital A & E Admitted
19th April 2007
Oxford - John Radcliffe Hospital
26th April 2007
= BrainBiopsy Oxford
27th April 2007
Discharged until results
8th May 2007
= Confirmed Lymphoma Cancer
11th May 2007
=Admitted to RBH
Bone Marrow Test
14th May 2007
=First Hickman Line
20th May 2007
= return to RB Hospital
21st May - 10th June 2007
= Chemotherapy & Steroids (part1)
11th June - 25th June 2007
= Home rest
25th June - 15th July 2007
= Chemotherapy & Steroids(part 2)
15th July - 22nd July 2007
= Home rest
23rd July 2007
= Back to RBH and Lumberpuncture
24th July - 11th August 2007
= Chemotherapy & Steroids (part 3)
28th August 2007
= Brain Scan and Blood Tests
4th September 2007
= Appointment with Consultant
3rd October 2007
= Blood Test
4th March 2008
= Blood Test/CT Scan
13th March 2008
= Consultation at RBH to plan treatment
27th March 2008
= Radiotherapy starts
28th,31st March ,1st, 2nd, April
=week 1 of Radiotherapy Treament
28th May 2008
appointment with consultant told Cancer free again
15th September 2008
Brain Scan as symptoms have returned
30th September 2008
Lymphoma returned no more treatment available
Jon is now Terminally ill

I'd rather he fought fires anyday.........

5 August 2007

5th August

1 comment:

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